What we do

We fund the best scientific research into rare genetic conditions to provide patients with tangible solutions.

Research generates hope

They have awful names and in some cases have no name at all, because they are so rare or unknown. They are rare and affect a small number of people, most frequently appearing in the first few years of life and changing the destiny of that child. We fight them because every life counts.

How we use the funds collected

Thanks to support from millions of Italians, we fund the best scientific research into rare genetic conditions.

  • 528 millions of euros invested
  • 1612 Researchers
  • 2632 projects funded

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