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For 20 years Telethon has been supporting scientific research
on muscular dystrophy and other genetic diseases
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Who we are
Telethon Italy is one of the biggest biomedical charity in Italy, whose mission is to advance biomedical research towards the diagnosis, cure and prevention of muscular dystrophies and other human genetic diseases. Telethon Italy focuses on scientific research and does not offer healthcare, material assistance to patients and families or advocacy.
It was founded in 1990 by a patient’s association, the Italian Union for the fight against Muscular Dystrophy (UILDM). The initiative was inspired by - but it is not affiliated with - other Telethon marathons promoted in the USA and France. Since 1991, Telethon Italy has invested 300 million Euros in research and funded 2,200 research projects on more than 400 human genetic diseases, which range from basic research to clinical trials.
The research portfolio includes intramural research (performed in three institutes) and extramural research through grants to universities, public and not-for-profit research institutes in Italy. Telethon fund-raising depends primarily on a solidarity marathon presented on RAI TV channels in December which raised last year over 30 mls euro. | |
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