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For 20 years Telethon has been supporting scientific research
on muscular dystrophy and other genetic diseases
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TelethonVideoPlayer
As a war reporter, Charles Sabine diced with death. Now he has an incurable brain disorder, Huntington disease, and terror is ever-present. Yet he has no symptoms and he decided to travel around the world talking about his own story and promoting knowledge and scientific research.
Telethon Italy is one of the biggest biomedical charity in Italy, whose mission is to advance biomedical research towards diagnosis, cure and prevention of genetic diseases. It was founded in 1990 by a patients' association, the Italian Union for Muscular Dystrophy (UILDM).
Fundraising depends primarily on a solidarity marathon presented on national TV channels: during the recent television marathon (11-12-13 December 2009), Telethon presented a short film telling Charles' story.
Read more about Charles Sabine on Intelligent Life, the quarterly lifestyle and culture magazine from The Economist.
Check here for international patients' HD associations.
Listen to Elena Cattaneo, an Italian researcher funded by Telethon who studies Huntington disease.
TelethonVideoPlayer
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