FOR A HIGHER QUALITY OF LIVING CONDITIONS

We work for the wellbeing of all neuromuscular disease patients.

Thanks to research and clinical practices, a higher quality of living conditions for patients becomes possible. Our commitment is to foster the wellbeing of all neuromuscular disease patients.

A NETWORK OF CLINICS PROVIDING TREATMENT ON THE CUTTING EDGE WORLDWIDE

  • The Telethon-Uildm competition announcements have enabled the formation over time of a network of excellence, made up of clinicians specialised in neuromuscular diseases.
  • These efforts take place alongside the day-to-day work of our four clinical centres dedicated entirely to neuromuscular disease patients.
  • Lastly, we work together with Italian and European bodies, associations and institutions. We do so because we firmly believe in alliances and their potentials for obtaining therapies as soon as the opportunity presents itself.

Thanks to our constant commitment, the living conditions of patients presenting genetic diseases have been significantly improved. We may consider the fact, for example, that the life expectancy of patients with muscular dystrophy has doubled over the last ten years. This is just one example of the value of the ‘seed’ work conducted by Telethon researchers, aided by our longstanding allies from the Italian muscular dystrophy union (Unione italiana lotta alla distrofia muscolare). Over the last few months, our clinics have been engaged in developing therapeutic approaches using human patients. This is an advance that the Italians achieved before many others, precisely as a result of these networking and training efforts!

The first Telethon-Uildm competition announcement dedicated to neuromuscular diseases dates back to 2002.
Thanks to this competition announcement, more than 150 scientific results were published in major scientific journals.
Thanks to this commitment, more than 6,000 neuromuscular disease patients have received concrete assistance.

 

The first NeMO clinical centre was opened in 2008 at the Milanese hospital, Ospedale Niguarda. The centres now total as many as four. Started up by Telethon in collaboration with other bodies, they aim to provide neuromuscular disease patients with a local point of reference. The NeMO clinical centres are specialised units with the means to provide fully comprehensive assistance to patients and their families.