OFFICIAL POSITIONS

Research, partnership, merit, excellence. All our official positions.

We consider research the only way forward to finding treatments for genetic diseases

In order to actively and proactively further Italy’s culture of science, we constantly engage in dissemination, information and awareness-raising activities. Our aim is to optimize Italy’s research system. We wish to remove all factors hampering our researchers as they seek to provide concrete answers to people who must struggle against genetic diseases. All this is part and parcel of our mission. This is precisely why we have formulated clear, transparent, future-oriented positions with regard to certain issues.

Our alliances

Fondazione Telethon pursues cooperation strategies to merge competencies with private companies in order to achieve full therapeutic development of the results obtained by its research.

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Animal trials

Our mission consists in funding the kind of research that may provide treatments for genetic diseases. We also oppose mistreatment of animals.

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Strimvelis: Telethon experience

Strimvelis, the first ex-­vivo gene therapy intended to treat patients with a ADA-­‐SCID, is the epitome of a product born thanks to a strategic alliance between a non-­profit organization and a pharma company.

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